Care of the Terminally Ill Child
– Information about a child’s concept of death, grief, physical and psychosocial needs, supportive, and the dying process.
Direct link: Care of the Terminally Ill ChildPediatric Palliative Care
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Palliative care (from Latin palliare, to cloak) is a specialized area of healthcare that focuses on relieving and preventing the suffering of patients. Unlike hospice care, palliative medicine is appropriate for patients in all disease stages, including those undergoing treatment for curable illnesses and those living with chronic diseases, as well as patients who are nearing the end of life. Palliative medicine utilizes a multidisciplinary approach to patient care, relying on input from physicians, pharmacists, nurses, chaplains, social workers, psychologists, and other allied health professionals in formulating a plan of care to relieve suffering in all areas of a patient's life. This multidisciplinary approach allows the palliative care team to address physical, emotional, spiritual, and social concerns that arise with advanced illness.
Extracted from www.wikipedia.org.
Care of the Terminally Ill Child
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Children’s Hospice International
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Children’s Hospice International
– Gateway for education, referrals and community resources for families coping with children that have catastrophic and terminal illnesses.
Direct link: Children’s Hospice InternationalChildren’s Hospice and Palliative Care Coalition
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Children’s Hospice and Palliative Care Coalition
– Promotes family-centered care for children with life-threatening illness by reducing physical, emotional, spiritual, and psychological pain for the entire family. [California]
Direct link: Children’s Hospice and Palliative Care CoalitionEdmarc Hospice for Children
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Edmarc Hospice for Children
– Offers home healthcare, hospice, and bereavement support. Material on services, the organization, and contact information. [Portsmouth, Virginia]
Direct link: Edmarc Hospice for ChildrenEnd-of-Life Care for Children
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End-of-Life Care for Children
– An educational palliative and pain management resource for parents and health professionals who care for children suffering from pain due to cancer. [Texas]
Direct link: End-of-Life Care for ChildrenInitiative for Pediatric Palliative Care
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Initiative for Pediatric Palliative Care
– Desire to enhance family centered care for children living with life threatening conditions through education, research, and quality improvement.
Direct link: Initiative for Pediatric Palliative CareRoyal Children’s Hospital: Paediatric Palliative Care
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Royal Children’s Hospital: Paediatric Palliative Care
– Focus is on the dying child’s quality of life, support for the family, and management of distressing symptoms. [Melbourne, Australia]
Direct link: Royal Children’s Hospital: Paediatric Palliative CareThe Jason Program
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The Jason Program
– Provides medical, emotional and spiritual care to Maine’s critically ill and dying children and their families.
Direct link: The Jason Program